I’m back in the land of the cold after being spoiled by the New Orleans sun, even though I spent most of my time laying in machines in radiology.
Bullet point summary because my brain isn’t functioning all that well after waking up at 4am for my flight home:
- Dr. W is very, very happy about my scans and labs
- He said my crashes post-Sando injections isn’t due to the med peaking in my system, but is from the initial drop off (there’s a spike, drop, then the longer peak with each dose). He said increasing the frequency to every 14 days instead of every 28 should get rid of that crash.
- I asked if my reaction to the Sando drop indicates liver involvement (carcinoid syndrome is linked to the liver) and he said no – the activity could be anywhere but since we don’t know where and it’s not showing up in my labs or scans that the only thing he’d want to do right now is adjust the frequency of my injections.
- Once lanreotide becomes regularly available and covered by insurance I should switch to that in a millisecond.
- One thing showed up on my CT and is probably nothing, but he said we’re going to assume it’s cancer until we know it’s not. I have an appointment on Monday with one of my local docs to see if we can figure out what it is.
Time to try to sneak in a nap.